UCRAID (Ukrainian Citizen and refugee electronic support in Respiratory diseases, Allergy, Immunology and Dermatology) action plan

Bousquet J.;Samolinski B.;Kaidashev I.;Maurer M.;Roche N.;Sousa-Pinto B.;Kurchenko A.;Stepanenko R.;Tsaryk V.;Klimek L.;Ventura M. T.;Bedbrook A.;Czarlewski W.;Lysanets Y.;Kupczyk M.;Skolimowski L.;Kulus M.;Del Giacco S.;Ollert M.;Garcia-Aymerich J.;RobaloCordeiro C.;Yorgancioglu A.;Schlapbach C.;Amaral R.;Bonaglia C.;Bosse I.;Buquicchio R.;Christou D.;Fedoruk G.;Fontanesi P.;Gemicioglu B.;Giuliano A. F. M.;Lepore P.;Nakonechna A.;Neisinger S.;Pereira A. M.;Ramanauskaite A.;Raciborski F.;Sitkauskiene B.;Sokhatska O.;Stepanenko V.;Stevanovic K.;Syzon O.;Kvedariene V.;de Vries G.;van Eerd M.;Valiulis A.;Fonseca J. A.;Anto J. M.;Haahtela T.;Schunemann H.;Zuberbier T.

2023-01-01

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Abstract

Eight million Ukrainians have taken refuge in the European Union. Many have asthma and/or allergic rhinitis and/or urticaria, and around 100,000 may have a severe disease. Cultural and language barriers are a major obstacle to appropriate management. Two widely available mHealth apps, MASK-air® (Mobile Airways Sentinel NetworK) for the management of rhinitis and asthma and CRUSE® (Chronic Urticaria Self Evaluation) for patients with chronic spontaneous urticaria, were updated to include Ukrainian versions that make the documented information available to treating physicians in their own language. The Ukrainian patients fill in the questionnaires and daily symptom-medication scores for asthma, rhinitis (MASK-air) or urticaria (CRUSE) in Ukrainian. Then, following the GDPR, patients grant their physician access to the app by scanning a QR code displayed on the physician's computer enabling the physician to read the app contents in his/her own language. This service is available freely. It takes less than a minute to show patient data to the physician in the physician's web browser. UCRAID—developed by ARIA (Allergic Rhinitis and its Impact on Asthma) and UCARE (Urticaria Centers of Reference and Excellence)—is under the auspices of the Ukraine Ministry of Health as well as European (European Academy of Allergy and Clinical immunology, EAACI, European Respiratory Society, ERS, European Society of Dermatologic Research, ESDR) and national societies.